Phone: 440.834.0011
info@bccns.org

Board of Trustees

	Kristi Schmitt Burr Executive Director, Ohio Kristi Schmitt Burr has served as the Executive Director, as well as a member of the Board of Trustees, of the BCCNS Life Support Network for the past nine years. Kristi was born in the Cleveland area and has spent much of her adult life in Geauga County. She attended Grinnell University in Iowa and Kent State University in Ohio. Kristi has two children: Hans, an attorney in Massachusetts, and Sarah, deceased. She and her husband, Jeff, have been married for twenty years and enjoy farming and agriculture. In addition to the BCCNS Life Support Network, Kristi has been involved with many other non-profit organizations and boards including the Genetic Alliance, WVIZ, WCPN, Ideastream, American Cleft Palate Craniofacial Association, Coalition of Skin Disease, National Organization of Rare Disorders, and the Commission on Dental Accreditation.
	William D. Ginn President, Ohio Bill Ginn, was born in 1923 in Philadelphia, Pennsylvania. He served in the US Army (enlisted) where he met his wife, Arlene (then an officer). He married Arlene (now deceased) in 1945 and they had four children (Anna, William, Randall, David). Bill also has ten grandchildren. Bill attended Bates College and Yale Law School. He is a retired partner of the Cleveland law firm of Thompson Hine LLP. Bill has been on the BCCNS Life Support Network’s Board of Trustees since helping to found it in February, 2000. Bill has a passion for the organization and its members. Unlike our other Board members, Bill is not affected with BCCNS, nor is anyone in his family. Bill became involved with the organization when approached by a long-time family friend, Kristi Schmitt Burr. With financial support and encouragement from Kristi’s parents, Wilbur and Eleanor Schmitt, Bill & Kristi incorporated the BCCNS Life Support Network. Bill has attended all 7 annual retreats as well as hosting numerous regional functions at his home in Chesterland. Along with BCCNS, Bill also serves as a Trustee or an Honorary Trustee of many other local non-profits including: Vocational Guidance Services; Eliza Bryant Center; Chagrin River Land Conservancy; The Nature Conservancy and Hopewell Inn. Bill also has a great love of nature and preserving land. Bill was instrumental in enabling the Geauga Park District to establish the 900 acre West Woods Park. The drive entering the West Woods bears his name.
	Ellen McCabe Treasurer, Ohio Ellen McCabe has joined LarsonAllen as a principal leading the firm’s state and local tax (SALT) practice. McCabe works across all the firm’s industry lines, helping clients maximize tax advantages, minimize tax exposure, and stay compliant within single or multi-state filings. Before joining LarsonAllen, Ellen was a partner in Ernst & Young's state and local tax practice. She has over 20 years of broad tax experience in the industrial and governmental sectors. She specializes in corporate income and franchise tax planning and spends most of her time working with large multi-state corporations. Prior to joining Ernst & Young, Ellen served as corporate tax manager responsible for oversight of state and local income tax compliance and all state and local income and franchise tax planning and audits. Prior to joining OMNOVA She served as a State of Michigan auditor responsible for auditing companies to ensure compliance with the state's tax code. Ellen holds a B.B.A. from Indiana University of Pennsylvania and a Masters in Taxation from Robert Morris College. She is a C.P.A. and a member of the American Institute of Certified Public Accountants. Ellen resides in Chagrin Falls, OH with her husband, Brian, and their two children, Meghan and TJ, who are both avid soccer players. Her hobbies include cooking and watching her kids sporting endeavors. She volunteers regularly by helping out at her children’s schools.
	Kathylyn Roth Secretary, Indiana Both Alan & Kathlyn recently join the board in 2010. Alan is a Science Teacher at a school for the blind. Kathlyn is a registered school nurse. They reside in Indianapolis, IN with their son, Marc. Kathlyn and Marc are both affected.
	Bryant Bradley Georgia Bryant Bradley has served as the President of the BCCNS Life Support Network for the past 6 years. Born in New York to an Army Colonel, Bryant was an “Army brat,” moving around a lot and living in Alaska, California, Hawaii, Kansas, Tennessee, Texas, and Washington. After graduating from college, she met her husband, Ren, while both were working at Milledgeville State Hospital in Georgia. They were married in 1974 in Savannah, Georgia. Five years later, their daughter, Nina, was born. Both Ren (now deceased) and Nina have Gorlin Syndrome. Bryant worked as a social worker for abused women and children; she retired in 1993 but has stayed active, writing grants for various agencies across Georgia and delivering food for the homeless and senior citizens 6 days a week. In addition to being President for BCCNS LSN, Bryant also serves as Secretary for the Georgia Domestic Violence Shelter.
	Julie Breneiser Pennsylvania Julie recently joined the Board of Trustees in 2010. Julie is currently working as an Asst. Teacher for special needs children and has worked as a Physician’s Assistant in the past. Julie resides in Reading, Pennsylvania with her husband and two daughters. Both Julie and her two daughters are affected.
	Mike Rainen Kansas Mike has recently joined the Board of Trustees in 2010. He is the owner of Rainen Companies, Inc. Mr. Rainen serves on many Boards in his local community. He and his wife, Kathy, reside in Mission Hills, KS. They have two daughters, Piper and Lauren. His daughter, Piper, is affected.
	Alan Roth Indiana Both Alan & Kathlyn recently join the board in 2010. Alan is a Science Teacher at a school for the blind. Kathlyn is a registered school nurse. They reside in Indianapolis, IN with their son, Marc. Kathlyn and Marc are both affected.
	Cindy Shelley Iowa Cindy lives in Creston, Iowa, and has been involved with this organization since finding the web site in February 2001. Both Cindy and her adult daughter, Cara, have Gorlin Syndrome. She has been a Board Member since 2003, chairing and planning the Annual Retreats in 2004 & 2005. Cindy has been a registered nurse at Greater Community Hospital since June 1979, working in Intensive Care, ER, and supervising. She has many certification/provider courses that she takes and renews on an ongoing basis. In her spare time, Cindy enjoys playing pool and quilting.