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Basal Cell Carcinoma Nevus Syndrome Life Support Network
To provide health care, counseling, and support services to children and adults manifesting the inherited genetic disorder most commonly known as Basal Cell Carcinoma Nevus Syndrome (BCCNS), with particular focus on early diagnosis and treatment for children evidencing the initial onset of BCCNS.
To develop information about the medical conditions and disorders experienced by those living with BCCNS; to share this information with clinics and health care providers treating patients with BCCNS and other similar disorders; and to undertake a collaborative approach to the diagnosis, treatment, prevention, and cure of the disorders encompassed by BCCNS.
To provide a supportive environment for families to seek treatment for their children and other family members, and to train physicians, nurses, and other healthcare providers to communicate more effectively with BCCNS patients and their families, as well as other similarly affected populations.
We Will Provide:
Individual and group support and counseling designed to help families cope with BCCNS.
Opportunities to meet, communicate, and network with similarly situated children and their families at Network-sponsored events, including multimedia presentations and other means of communication.
Referrals to specialists and/or healthcare facilities most able to diagnose and treat effectively the disorders and diseases encompassed by BCCNS.
Education, resources and research
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|The information in this web site is for educational purposes only, and is not providing medical or professional advice.
It should not be used for diagnosing or treating a health problem or disease. It is not a substitute for
professional medical care. If you have or suspect you might have any health problems, you should consult a physician.
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